Sunday, 27 December 2015

It's the most overwhelming time of the year!

It's been a strange Christmas this year. Esmeralda's mum has been staying with us as usual, but we spent half of Christmas Day with Russell in his hospital room, and the other half travelling to and from the hospital (on lovely quiet roads though, that was a definite plus!) Russell enjoyed the experience and we took some lovely photos of him with his stocking full of presents, sitting in his new jumperoo, and surrounded by shiny wrapping paper! Even though we only took five presents to the hospital for him Peter became overwhelmed after about two so we stopped there. The room is sweltering and small, the lights are very bright, there are so many different smells and nurses coming in and out so we can't even keep the door closed and dim the lights. He also absolutely hates it when young children or babies cry, and unfortunately there are a lot of crying babies in hospitals!

Peter did very well considering but spent much of the time on high anxiety alert staring into space and talking nonsense, zoned out watching Tractor Ted and having mini meltdown after mini meltdown. He has barely slept since Christmas Eve and hasn't really been able to enjoy anything. He really needs life to return to normal so we'll be having some quiet days, taking down the decorations, ignoring the rest of his presents until he is better able to cope, and eagerly awaiting the return of his clubs (he does running, horse riding for the disabled and swimming lessons) in a week or so when term starts again.

We're looking forward to next year when we'll all be together at home and we'll be able to relax and celebrate in a way that meets all our needs. We've had enough of hospitals - Russell included!

Tuesday, 15 December 2015

Mary, did you know?

We have two Pentatonix Christmas albums in the car at the moment, and a song that has particularly struck me recently (whilst belting it out at the top of my voice on the motorway to and from the hospital to see Russell) is "Mary, did you know?"

It makes me think about the little ones we're privileged to care for, and their futures. I feel for the birth mothers who were the first to hold these newborn bundles of potential but won't be there for the rest of the journey. We don't know what the children's special skills will be, how they will make a difference in the world or anything about the men and women that they'll become, we just try to do the best we can whilst they're with us. I'm sure Mary wasn't a perfect parent all the time, but she raised an amazing man!